im back..

well i guess i forgot about this... part of this fibromyalgia forgetting a lot...this has been happening a lot recently not good.
im back suffering again..sucks..but back to the pain clinic on Monday :) new drugs maybe?
well Ive had to stop doing a lot lately cause of this stupid flare up no nights out few nights in with friends,
had to prospone learning to drive as well.
and work god so doped up on morphine there's no way i can work not sure what i can do anymore feeling a bit hopeless and that its rather annoying to be honest.
ive been trying to walk around the block about 3 times a day just to keep moving and helping my body with it all but im not sure its working just feel so rubbish everything's gone.
once again not only am i suffering with this fibro..ive got a bloody throat infection too so on the antibiotics (ha more).
however mum and dad are helping alot and starting to understand the whole fibro a bit more been showing them stuff on the net to help them understand stuff not quiet sure there really that aware though. there a bit frustrated with me because i cant seem to do much on my own or anything these days and its annoying asking for help and them being like your fine you can do it by yourself bla bla bla but me just getting frustrated cause i cant cope with doing it.
ive applied for alot of diff benefits to try and get some help while not at work DLA, ESA and a bus pass (which has come) and is very useful to get around anywhere cause its free woop :) even if it just means getting a bus to go into town a 5/10 minute walk if im having a rough day :).
anyway enough from me today ill write again when i have something or when i remember once again to write x

ahh so i havent blogged in forever lots has happened.
i left uni due to not being able to cope.
i broke up with the boyfriend.
i moved home with my mum :)
tablets are pretty much under control now
lots off less pain.
lots of nights out with my friends.
much more happier and positive
and alsoooo getting a job
got my playdate with a nursery tomo for my job :)
its all go
and learning to drive
ahhhh lifes really good now
im soo happy :D x

Whats going on..

So i havent blooged in a few weeks so i thought it was about time to update you all..
so on 19th of September i went to pain management clinic and meet my specialist who is lovely. shes made me stop a lot of my tablets mainly tramadol as its not the main type of tablet for fibromyalgia and apparently i was taking around 80mg of morphine a day with it. and now im on MST which are like slow releasing morphine tablets and they feel so much better im still in pain but not so much im having some bad days with them though still. Ive also suffered with some side effects on them so had to have anti sickness tablets and antibiotics to help sort them all out.
My specialist, has also given me a relaxation CD that i have to do to relax every day for around 20 minutes because of the stress that the disease is causing me and of course with uni now being back im even more stressed.
Then next big bit of news i guess is that UNI is back :) im glad im back into the swing of it only been back a week but its definitely great and keeping me motivated, just got to keep on top of things, so far i haven't crashed at uni but had a lot of work, and i do feel like crashing but im going to finish this blog and then do some more work while trying to just relax in the sun. which is not like me at all ha!

i guess the next few weeks are going to be stressful with work from uni and assignments coming in but ill try keep you all updated, i just hope that i don't crash at uni.!!

Washington .D.C.

So from the 8th September - 14th September i spent some time in Washington D.C. America.. it was absolutely amazing!!! i went with university as part of my course...doing forensic science going into my 2nd year,
had a fab time did so much but did over do it one day and ended up having to rest up for one day which was a bit upsetting.

we went to the armed forces toxicology lab, we did a bus tour of Washington saw absolutely everything, did alot of shopping, went to madame tussaudes, saw the pentagon, and went out to ruby Tuesdays and the hard rock cafe we also went to the crime and punishment museum the engravement and printing bureau and the George Washington university. we did absoultely everything and i had a fab time,

i met some amazing friends which made the whole experience better, had some long days and im extremely tired still and recovering

then Thursday the 15th September was my 21st birthday i had an amazing day with the boyfriend got some lovely prezzies and plan on going out Tuesday for meal and drinks:) so happy i have the best family, friends and most of all boyfriend, and parents :) x
i cant wait too get back to uni and start second year its all starting to be a bit more promising at the moment! and on monday i have the pain management clinic so hopefully should get something will blog after that x

So what is Fibromyalgia?

So many people have asked me what is fibromyalgia, so here is the medical definition, and my own definition of it and what it all entitles i just thought i would try and explain a bit.

So in my own terms, fibromyalgia is just a widespread chronic pain disorder and the pain level interferes with sleeping and daily life.
On looking at the UK Fibromyalgia website, it states that fibromyalgia is:
FMS (fibromyalgia (fi-bro-my-Al-juh) syndrome) is a widespread musculoskeletal pain and fatigue disorder for which the cause is still unknown. Fibromyalgia means pain in the fibrous tissues in the body.

The pain comes from the connective tissues, such as the muscles, tendons, and ligaments. FMS does not involve the joints

(http://www.ukfibromyalgia.com/what-is-fm.html)

Everyday i suffer with pain all over, and i can't get up without my knees aching and my fingers are so stiff i cant move them. its a struggle getting from bed to the bathroom especially when my knees are bad. most days i don't do much apart from get up and potter around the house getting my self dressed, etc, i go back to university in a few days and im really worried because i cant handle pottering around the flat at the moment let alone going to university to learn, but that's a new challenge.

The NHS describes Fibromyalgia as:
Fibromyalgia, also called fibromyalgia syndrome, is a long-term condition that causes pain all over the body. 
The name fibromyalgia comes from three Latin words:

• 'fibro' meaning fibrous tissues, such as tendons (tissue that connects muscles to bones) and ligaments (tissue that connects bones to bones)
• 'my' meaning muscles
• 'algia' meaning pain

However, the pain of fibromyalgia does not just affect the muscles, ligaments and tendons, but is felt all over the body. It results in widespread pain and extreme tiredness. People with fibromyalgia may also have:

• difficulty sleeping
• headaches
• irritable bowel syndrome (IBS)
• muscle stiffness

The NHS go on to explain about the patients outlook on life,
There is currently no cure for fibromyalgia, because the cause is unknown. However, there are a number of treatments that may ease symptoms. Treatment tends to be a combination of:

• medicines – such as antidepressants and painkillers
• talking therapies – such as counseling
• lifestyle changes – such as better sleeping habits and relaxation

In particular, exercise has been found to have a number of important benefits for people with fibromyalgia, including helping to reduce pain.For most people, the symptoms of fibromyalgia are permanent, although they can vary in severity. There are several lifestyle changes that can help to relieve your symptoms and make your condition easier to live with.

(http://www.nhs.uk/Conditions/Fibromyalgia/Pages/Introduction.aspx)

The are also plenty of symptoms to this syndrome,
Your symptoms may sometimes get better or worse depending on factors such as, changes in the weather, stress levels, and how physically active you are,
The symptoms are,

• pain- widespread,(an ache, a burning sensation, a sharp stabbing pain)

• Extreme sensitivity, you can become extremely sensitive to pain all over your body, you may find the slightest touch very painful,, hyperalgesia- when you are extremely sensitive to pain, allodynia- when you feel pain from something that should not be painful at all, such as a very light touch

• You may also be sensitive to such things as, smoke, certain foods, bright lights
  
• stiffness, most severe when you have been in the same position for a long time , like first thing in the morning after sleep.
  
• muscle spasms can affect sleep
  
• fatigue, extreme tiredness, can range from a mild, tired feeling to exhaustion often experienced during a flu- like illness, something severe fatigue may come on very suddenly and can drain all you energy , where you may be too tired to do anything.
  
• poor quality of sleep, you can often wake up tired even when you have had plenty of sleep, this is because fibromyalgia can sometimes prevent you from sleeping deeply enough to refresh you properly 'non-restorative sleep'.
  
• cognitive problems ('fibro-fog'),  trouble remembering and learning new things, problems with attention and concentration, slowed or confused speech,
  
• Headaches, if you have pain and stiffness in your neck and shoulders from fibromyalgia you may also have frequent headaches, these can vary from being mild headache to severe migraines, which may also involve other symptoms such as nausea.
  
• irritable bowel syndrome (IBS) you may develop IBS, its a common digestive condition causes pain and bloating in your stomach, it can also cause constipation and diarrhea.
  
• Other symptoms can include, not being able to regulate your body temperate, restless leg syndrome, tingling, numbness, prickling or burning sensations in your hands, feet, tinnitus, (noise in both or one ear which comes from inside the body), unusually painful periods (in women), anxiety.
  
• Depression, fibromyalgia can lead to depression this is because the condition can be difficult to deal with and low levels of certain hormones, such as serotonin, can make you prone to developing depression, depression can cause many symptoms including, constantly feeling low, lack of interest in the things that you usually enjoy, feeling tearful.

so i hope that this blog gives everybody a insight into what fibromyalgia entitles and how hard it can be too cope.

Before diagnosis..

life before the diagnosis,

i don't know where to start really, i guess the beginning however i don't really remember much when i was little so according to my mum every day i would wake up and be in pain, one part of my body or another would hurt. she says that i never slept well and used to wake up in the middle of the night crying because the pain was bad. i remember telling her numerous of times that i felt old, i guess this is because my muscles would ache and i thought that is what old people would have rather than me.

we have gone to numerous of consultants and physios and i have had acupuncture, reflexology and even been to see a osteopath, none of these seemed to help the pain they used to try and help me for a month or so and be sent for MRI scans, blood tests and every other test they wanted to give me. however they usually came back as nothing being wrong.

i have been diagnosed with so many other things, sciatica, one leg longer than the other, twisted pelvis,chronic fatigue syndrome (which is apparently closely linked) even the last diagnosis was arthritis. (im sure there was others as well  but i cant seem to remember)

 Then when i came to university and going to the doctors here and then finally getting somewhere was the best feeling.
i remember that school was terrible, i used to have numerous days of from school, due to not being able to move, ( im sure everybody used to think i was faking) i used to get so behind on school work and when i went back i would be lost as i didn't know what they were doing. however i made it through my g.c.s.e.s, and after that i had a year out because i was knackered and could cope with doing my A Levels, so after my year out i went to college where i did well and made it into university. where i am now successfully studying forensic science, i do miss quiet a lot of days but i have a great support team of friends and lecturers who help me through. i passed two of my modules this year, and unfortunately failed two but only just (so i have done my resists in them)

so i guess before i was diagnosis life was hard and it was all down to this.