So i just found this and thought it seemed apporpriate to post. i think your ment to do it day by day but hey im going to do it all :)
30 Things About My Invisible Illness You May Not Know
1. The illness I live with is: fibromyalgia.
2. I was diagnosed with it in the year: 2011
3. But I had symptoms since: i was 10 so 2000.
4. The biggest adjustment I’ve had to make is:i haven’t really had to make adjustments because i have lived with it since i was little but i guess i just cant do things that i used to or that other people my age can do.
5. Most people assume:that there’s nothing wrong or i just want to get out of something.
6. The hardest part about mornings are: being stiff and trying to get to the toilet quick enough when my legs are so stiff to walk on.
7. My favorite medical TV show is: probably the real a and e on pick TV ( don’t really watch medical shows)
8. A gadget I couldn’t live without is: i guess my phone or laptop otherwise i wouldn’t really be able to socialize with my friends or my parents as well.
9. The hardest part about nights are: the tiredness and not actually being able to sleep properly
10. Each day I take 20 tablets, since the doctor told me not to take another kind of drug.
11. Regarding alternative treatments: i cant wait to find out some more.
12. If I had to choose between an invisible illness or visible I would choose: i wouldnt really change myself im just glad i finally have a name too it so i can at least start to control it in some way.
13. Regarding working and career: im at university studying forensic science, im very optimistic about what ill be able to do once im finished it very hard to think about but just taking it step by step at the moment.
14. People would be surprised to know: its not all about fibromyalgia i am me that’s just apart of me its not who i am.
15. The hardest thing to accept about my new reality has been: that i might not be able to control the pain, and there isn’t a cure.
16. Something I never thought I could do with my illness that I did was: for my 19th birthday do go ape (a kinda assault course in the trees) it was very difficult but i wanted to do it.
17. The commercials about my illness:i dont think there is much i guess nobody really understands about it.
18. Something I really miss doing since I was diagnosed is: i guess ive never had too miss anything because i have never really had time where i didn’t have pain, but i would say probably going out with the friends for a catch up and being able to walk without pain!
19. It was really hard to have to give up:i guess i haven’t really given up much just changed the way things are, but definately miss cholcolate or the occasional drink.
20. A new hobby I have taken up since my diagnosis is: blogging! ha just too keep people informed.
21. If I could have one day of feeling normal again I would: i dont wish to be normal just pain free so i could get comfortable.
22. My illness has taught me: that its not about the illness its about how you cope.
23. Want to know a secret? One thing people say that gets under my skin is: have you taken your tablets, when im in pain, or you cant do that it will make you worse.
24. But I love it when people: look after me and help me when i ask, like when im getting in and out of the bath, my boyfriend helps me just things like that.
25. My favorite motto, scripture, quote that gets me through tough times is:i have two both by Marylin Monroe my first one is
“I believe that everything happens for a reason. People change so that you can learn to let go, things go wrong so that you appreciate them when they’re right, you believe lies so you eventually learn to trust no one but yourself, and sometimes good things fall apart so better things can fall together.”
and the second is
“I’m selfish, impatient and a little insecure. I make mistakes, I am out of control and at times hard to handle. But if you can’t handle me at my worst, then you sure as hell don’t deserve me at my best.”
26. When someone is diagnosed I’d like to tell them: don’t let it rule your life at first its hard not too because of the pain and not being able to do much. however it will get better.
27. Something that has surprised me about living with an illness is: if i push myself too hard i do have days after where i cant do much. just have to take it day by day.
28. The nicest thing someone did for me when I wasn’t feeling well was: just hug me and keep me company :)
29. I’m involved with Invisible Illness Week because: i think its an ideal way too show people about the illness and inform them about myself.
30. The fact that you read this list makes me feel: that you are interested to learn some more and i would be grateful to everyone if we could just spread the education that fibromyalgia is a real illness and should be more widely recognized by professionals and the NHS.
30 Things About My Invisible Illness You May Not Know
1. The illness I live with is: fibromyalgia.
2. I was diagnosed with it in the year: 2011
3. But I had symptoms since: i was 10 so 2000.
4. The biggest adjustment I’ve had to make is:i haven’t really had to make adjustments because i have lived with it since i was little but i guess i just cant do things that i used to or that other people my age can do.
5. Most people assume:that there’s nothing wrong or i just want to get out of something.
6. The hardest part about mornings are: being stiff and trying to get to the toilet quick enough when my legs are so stiff to walk on.
7. My favorite medical TV show is: probably the real a and e on pick TV ( don’t really watch medical shows)
8. A gadget I couldn’t live without is: i guess my phone or laptop otherwise i wouldn’t really be able to socialize with my friends or my parents as well.
9. The hardest part about nights are: the tiredness and not actually being able to sleep properly
10. Each day I take 20 tablets, since the doctor told me not to take another kind of drug.
11. Regarding alternative treatments: i cant wait to find out some more.
12. If I had to choose between an invisible illness or visible I would choose: i wouldnt really change myself im just glad i finally have a name too it so i can at least start to control it in some way.
13. Regarding working and career: im at university studying forensic science, im very optimistic about what ill be able to do once im finished it very hard to think about but just taking it step by step at the moment.
14. People would be surprised to know: its not all about fibromyalgia i am me that’s just apart of me its not who i am.
15. The hardest thing to accept about my new reality has been: that i might not be able to control the pain, and there isn’t a cure.
16. Something I never thought I could do with my illness that I did was: for my 19th birthday do go ape (a kinda assault course in the trees) it was very difficult but i wanted to do it.
17. The commercials about my illness:i dont think there is much i guess nobody really understands about it.
18. Something I really miss doing since I was diagnosed is: i guess ive never had too miss anything because i have never really had time where i didn’t have pain, but i would say probably going out with the friends for a catch up and being able to walk without pain!
19. It was really hard to have to give up:i guess i haven’t really given up much just changed the way things are, but definately miss cholcolate or the occasional drink.
20. A new hobby I have taken up since my diagnosis is: blogging! ha just too keep people informed.
21. If I could have one day of feeling normal again I would: i dont wish to be normal just pain free so i could get comfortable.
22. My illness has taught me: that its not about the illness its about how you cope.
23. Want to know a secret? One thing people say that gets under my skin is: have you taken your tablets, when im in pain, or you cant do that it will make you worse.
24. But I love it when people: look after me and help me when i ask, like when im getting in and out of the bath, my boyfriend helps me just things like that.
25. My favorite motto, scripture, quote that gets me through tough times is:i have two both by Marylin Monroe my first one is
“I believe that everything happens for a reason. People change so that you can learn to let go, things go wrong so that you appreciate them when they’re right, you believe lies so you eventually learn to trust no one but yourself, and sometimes good things fall apart so better things can fall together.”
and the second is
“I’m selfish, impatient and a little insecure. I make mistakes, I am out of control and at times hard to handle. But if you can’t handle me at my worst, then you sure as hell don’t deserve me at my best.”
26. When someone is diagnosed I’d like to tell them: don’t let it rule your life at first its hard not too because of the pain and not being able to do much. however it will get better.
27. Something that has surprised me about living with an illness is: if i push myself too hard i do have days after where i cant do much. just have to take it day by day.
28. The nicest thing someone did for me when I wasn’t feeling well was: just hug me and keep me company :)
29. I’m involved with Invisible Illness Week because: i think its an ideal way too show people about the illness and inform them about myself.
30. The fact that you read this list makes me feel: that you are interested to learn some more and i would be grateful to everyone if we could just spread the education that fibromyalgia is a real illness and should be more widely recognized by professionals and the NHS.
No comments:
Post a Comment